Tag Archives: love

No drama

I had a friend once, I use the term friend rather loosely now but then she was what I would class as dear to me. We had walked though a lot together and I assumed we would continue to do so.

Then when in the midst of Livvy’s regression I was crying down the phone to her when she uttered the words that have scarred my heart for such a long term “I swear your life is like a trashy soap opera, everything happens to you, or maybe you just like the drama”.

I remember the impact of these words as if it was yesterday. How anyone could believe that this was the journey of life I had wanted to take was beyond me but to accuse me of being dramatic hurt. In fact it hurt so much that I shut down, I didn’t allow my feelings to show. I closed the door on that friendship and many others in fear of judgement.

Why am I telling you all this?

Because I am in a place now where I am ready to own my own story. Ready to embrace what I have lived, not with echoes of shame but with pride.

Having a child who was born with a debiliatiting condition was hard but not knowing what it was and not expecting it was literally a nightmare. I cannot find the words to explain how painful it was to lose my daughter to Rett Syndrome, twice. Watching her eyes leave my face, her words disappear from my ears and her movements lost to the stereotypical.

To see the fear in her eyes as she screamed and screamed, crying out for me to rescue her. It broke me in inside, I cried out to God so often to heal her.

But he didn’t.

Yet slowly and surely he healed me.

I finally began to embrace the journey I was set upon, although it was very different from anything I could have ever imagined it was full of wonder and joy.

Joy, does that surprise you?

My daughter had a severe devastating condition, my son has a very complex disability but both of them loved, loves life in a way that brought, that brings me so much light.

It’s took me a long time to get to a place where I don’t apologise for what some see “as drama” in my life.

I have surrounded myself with people who get it or who try to understand it.

I have walked away from those who don’t or who don’t want to.

I can accept that some people cannot understand the life I lived or now the life I have chosen and that’s ok.

We are never going to be a typical family and I am embracing that, celebrating that.

Yes at times I am lonely and I do get sad at having to apologise for another missed get together, group activity or friendship meal.

But my children will always be my first priority, always my heart.

I don’t know if my friend understood the impact of her words or how they would change me inside. Maybe it was meant as a throw away comment that wasn’t supposed to find roots and bury itself deep.

Maybe it was my state of mind back then that fed and watered these seeds of deceit.

I don’t know and I actually don’t care.

Because I’m not that person anymore.

I cannot say that harsh words don’t still sting or dig deep in my heart, but they don’t get to stay and or get to take root anymore.

I am stronger than I have ever been.

I have faced the darkness of death and my memories, love brought me the light.

I face the suffocation of fear but my sons smile breathes air into my lungs.

My children are my world, they are the air that I need to breathe.

I am stronger for being their Mama.

My faith is stronger than my fear.

To love is to be vulnerable

I am in a little bit of a state right now, anxiety is winning the battle for my mind and my soul.

I hate that I get this way, I wish I could lie still in the peace of faith but I cannot. In fact I suck at lying still anywhere.

Tomorrow my little one is having an MRI which requires him to have a general anaesthetic and the fear of the ‘what if’s’ are just eating away at me.

Do I pack for more than a day? Can I trust he will be out on the same day as planned and the major one and the truth of my heart, will he be ok?

My head tries to remind me of how many people have this kind of a test each day, how its a simple non invasive test but my heart just is screaming “My son”.

Having a child with complex needs leaves you open and fearful. Your heart and mind goes to places many others never venture. Being a mom who has lost a child my mind has been there and lived it and somehow is just about surviving it.

So why do I do what I do?

This is a question I get asked a lot, mostly from parents who have children with disabilities or those that have lost a child. Why do I put myself back there. Why have I adopted, why a child with complex needs and why do I risk my heart again?

To be truthful I am not sure I have an answer for this question.I think we need to go back to the beginning. I truly believed I was a weird child, I struggled with emotions and worries before I even knew what they were. Sensitive to other people’s feelings to an extent that would have me cry myself to sleep with another’s pain. The world seemed a scary place and people often cold and distance. I didn’t understand people and to be honest I am not sure I actually do now.

I would watch people destroy each other with words out of hate, jealously or indifference and I just wanted to run and hide. I tried often to lose myself between the pages of a book preferring the lands of make believe to reality. When books didn’t work I turned to alcohol just to allow me the freedom from thinking, from caring. A few drinks in and life made more sense or so it seemed. But with sobriety came reality and my reality was that I was difference and that was something I had to find a way to accept, to understand.

I had to learn to embrace who I was and the ways of my heart. Understand that oblivion wasn’t a place I could stay or actually a place I really wanted to be.

I had to find what made me happy and that journey of self acceptance started with my marriage but mostly from becoming a Mom. I guess this reads as mush but I truly believe being a Mom allowed me the freedom to know and understand true love. Everything I wanted for my children was what I had always wanted for the world, It was a real aha moment.  But being a Mom is scary stuff besides having to feed, clothe and keep these little ones alive you are the window through which they start to see the world. I never wanted them to feel weird or difference. I wanted them to realise that they were unique, that each of them had been individually made with purpose. That they were exactly who they were supposed to be.

But guess what if my children were made with purpose and they are exactly who they are supposed to be then by default this means so am I.

Yes I may be a little weird or strange (I’ve been called) my heart may break more often than others and I may love with an intensity that seems insane to others but this is me. This is my heart and just as my girls were perfectly formed in my womb I was in my mothers.

I still strive for answers to questions others don’t understand, I think way more than should be humanly possible (my husbands words) but I am who I was meant to be.

I love to love. 

This is me in a nutshell.

I love the joy of knowing that someone understands how valuable they are, how they are a gift to my life in so many ways. I want everyone on the planet to know their true worth.

Happy clappy, airy fairy, who cares, I am who I am.

So why wouldn’t I be sitting here in a state of fear loving a child that was not born to me. The biology bit is irrelevant, God called me to be his Mama and I am so damned happy he did. Yes it’s scary, yes I am fearful but I am so blessed to love this kid.

Why did I adopt?

Why not, when there are children in this world that needs a home and someone to love them, why shouldn’t I. The complexities of anyone comes in so many difference forms, who cares, we are all uniquely and wonderfully made.

I feel C.S Lewis says it perfectly here, “to love is to be vulnerable” but after spending so many years of my life trying to stay in that dark and safe casket I can truly tell you that right now I am fearful, but I am living fully.

Anxiety, heartbreak and fear they are emotions that do and will often overwhelm me, this is part of who I am. Acceptance of these is still journey I am travelling. But non of these compare to the joy of living my life fully, how being true to my heart is freedom in itself.

So what it’s the weekend

Seriously it’s official if I see one more TFIF status today I may just lose it. 

So what it’s Friday that doesn’t automatically mean that tomorrow I get to do nothing. No tomorrow I will still have to get up to do medications and nappy changes. My back will still ache from lifting and if we follow on from our current evening schedule I will also still be sleep deprived. 


Oh it’s the weekend so that means my big boy is off and that brings me the joy of chasing him around and saying “please leave alone” every second for two days. 

All joking aside, ok moaning aside I do appreciate the end of a normal working week and that for many tomorrow and Sunday are days of relaxation but seriously stop rubbing it in. 

Please think of us exhausted parents those like me to who the weekend is just another day. In fact the weekend is actually a little harder as school does give me a little respite. 

I absolutely love my life and fostering a child with special needs is a great job but the reality of it is that it is 24hr, 7 days and week and 365 of the year. Being a mom of a complex needs child means exactly the same. So as a mom and foster mom of both I may be slightly shattered. Though as we enter the weekend of Mother’s Day I am so thankful for my boys. It just means at times I just have the urge to strangle those who write TFIF. 

Born in my heart 

So it’s seems my little man loves the hospital so much he had to return for another visit. This time of course he had to up the drama level a little or a lot as the case may be.

I’m exhausted both physically and mentally, my body aches and is craving sleep and my mind well maybe we better not go there. 

The thing is I know the life I have chosen to live could get scary, that adopting a child with such complex needs could take me back to a place of such anguish, fear and pain, I do understand this. 

Yet as I sit here in the hospital room after a few days of real fear all I am feeling is thankfulness. I’m so very grateful and honoured that I get to be by this little ones side when he struggled. So blessed that when he needed me I got to be there.  

I know some people do not understand my life’s choices, they see the risk, the pain and understandably they could never imagine putting themselves through it and I completely get that. I can honestly tell you that this week I was petrified. Yet even now as I still reel I know how lucky I am and I don’t doubt or regret my decision to adopt this little one. I am counting down the days till he is officially mine, my son, my heart, my world. 

Life is certainly going to be an adventure and whilst my life may be extremely different to others I am so very content, so very happy. 

And whilst I understand why people ask me “how can I ” my answer will always be “how couldn’t I”.

This boy may not have been born from my body but he certainly was born in my heart.

Eight years 

I wasn’t sure I was going to write this year, I was thinking, wondering if I should let the day go past without remembrance. Yet I knew it would be a lie, a falsehood because pretending that this anniversary doesn’t exist doesn’t make it so. In fact the pretence builds its power giving it more control.

Eight years, eight long years of missing my beautiful daughter. 

Eight years since I held her last in my arms.

Eight years since I heard her sweet giggle.


Grief, it’s a horrific road, it often plays unfair. Sometimes it even allows you to feel like you are winning, only to sweep your feet from underneath you, cold and swift. 

Yet the truth is that grief and love, they walk hand in hand. Without one you would not get the other.

So I’ve decided today that I’m not going to hide away.

I’m going to immerse myself in all that was Olivia, 

That is Olivia.


I’m going to give myself permission to walk through the valley of pain in hope to find a place of peace.

I’m going to remember her sweet little ways, her cheeky character, her strength of spirit.

And I’m going to give thanks 

Thanks that even now in the midst of grief, I am so thankful that I got love.

I am one incredibly blessed woman that I was lucky enough to have this child call me mom. 


That I would walk a lifetime in pain for the privilege of being Olivia mom. 

That whilst nine years will never be enough they were such a gift. 

My beautiful girl I wonder if you really knew how you changed my life. How you opened my eyes into a world of innocence and honesty. How living one day with you would often seem like a lifetime. You taught me so much, you challenged me, to embrace each moment, to celebrate each breathe. 

Many can travel this life without really knowing their destination, their purpose. You young lady gave me mine, you made it crystal clear what was expected from me, I’m still hearing your instructions from heaven. 

Be kind for kindness sake
Be thankful for all things 
Stand up for what matters 
Be the voice of the voiceless 
And never ever be afraid to say yes to love. 

We are not all promised forever but knowing you are loved is a lifetime gift. 
Thank you for being one of my greatest gifts.

My beautiful daughter
My inspiring Livvy.

Until I get to hold you again, love you girlie xxx

Twenty years of flying

Dear Alan 


How do you find the right words to describe twenty years of marriage? I could go with the old adages “I would have got less for murder” or you are “my old ball and chain”.

Yet none of these are right. 



I’m simply going to say 



“You gave me wings and encouraged me to fly”.


Now it may not be politically correct or of a feminist nature to say my husband completes me or that I finally found myself with you, but this is the truth. Before I met you I just didn’t know who I was. My identity was formed by the opinions of others of who they wanted me to be or what suited them. You came along and just let me be and you loved me for me, eccentricity and all. Never did you laugh at my wild ideas or my crazy plans you just stood by my side and said let’s try it.



You have be my core, when I have felt weak and lost you have been my strength and my direction. 


When we lost Olivia I wasn’t sure I could carry on but slowly even in the midst of your own pain you held me close reminding me daily that life has so much left to give and that we still had a journey to make.

You make me laugh so often, sometimes even when you don’t mean to and to be honest those times are often the funniest (sorry). 

You love on your children with such tenderness that watching you hold our new son in your arms makes me fall in love with you all over again.

Let’s be honest though you are annoying at times, singing out of time with the songs on the radio, keeping me awake with your snoring or leaving your socks on the floor. Still I guess I would be walking a dangerous road if we were to compare tidiness as I am far from the neatest.

I actually cannot believe we have been married for twenty years. In fact I have now spend more than half of my lifetime with you. Yet it still feels so short, we have so many plans and memories still to make. Children to raise, daughters to marry off (ha ha) sons to care for. 


You are simply amazing and I know you know how much I love you but I do wonder if you know how much I admire you. 


I often get asked how I do what I do, my answer is simple “because of you”. Alan you are my strength, I know I can go out into the world and try things knowing that whatever the outcome if I fail or if succeed you will be there waiting for me. 



I watched your face as I graduated last week your smile spoke volumes. You were so proud of me as I collected my degree but I couldn’t have done it without you. Endless cups of tea, having the children whilst I study. You were my support system and my room service all in one. 


Happy anniversary dear husband, thank you for loving my unconditionally. For caring for me, for not strangling me at times.



I love you today, tomorrow and forever and whatever the future holds let’s laugh hard, cry hard and just embrace life together.



Love you moon, stars and back again



Your darling, wonderful, beautiful wife (writers privilege)



Sara xxx 

The unwanted visitor 

The thing about grief that drives my heartache is that it doesn’t care. 

Its has no discrimination, it will visit the young and the old, the rich and the poor, the healthy and the sick.

It’s not worried if today is a good day or if the moment is wrong, it has its own timing, it sings to it’s own tune.

It fact it is rather rude and has no boundaries at all and no matter how much I try it will not go and sit in the corner for a little while. 

The notes are its own and its music we just have to play, often on repeat, over and over. We fall asleep to its unique symphony, we wake to its morning chorus. 

Someone once told me I was broken, I don’t think they meant it in the way I understood it but I totally agree. 

I am completely broken. 

Grief leaves you with a brokenness that you can work through but from which you can never fully heal.

You cannot go back to who you were before your unwelcome visitor came to stay.

Yet in the brokenness you will see light, a gentle flame that holds out refusing to give in to the darkness. 

My realisation thanks to my new best friend called grief is that it wouldn’t hurt so deeply if it didn’t matter.

The pain that is tearing at my heart, it’s ok because it’s a testimony 

A testimony to love.

You see just like grief, love is another than pops up and won’t leave you alone.

It tangles your heart in web of moments and memories, wonderful heart fluttering emotions. 

So grief may be the hardest of emotions that leaves you gasping for breathe, but fight back reminding it that it’s is also one of great celebration, 

We loved, we laughed, we lived.

We created those moments that we will cherish for all time. 

To live we love. 

To love we have to grieve. 

So whilst there are times where grief and I will fall out, grief is the friend I will welcome again because my grief is my testimony to my love. 

Why – Orlando xxx 

I haven’t been able to write this week. I just couldn’t find the words to really explain my feelings,my utter horror at the atrocity committed in Orlando this week.

My heart breaks for the families of those who lives were lost, stolen.

My heart breaks for the LGBT community that has suffered so much already. 

How do you find words to comprehend such pain? 

There simply aren’t words.

My heart is aching terribly 

But my head is full of whys. 

Why did this happen?

Why was this allowed to happen?

Why is there such bigotry in this world?

Why is there such hate?

Why can’t people just be free to love whoever they want?

I pray for a world were love is celebrated in all forms. Where there is no “it should be this way” or “that isn’t right”.

I pray for a world where love is just seen as love.

Love can and one day will unite this world it’s this hope that I hold on to.

What defines you!

If you were to read about my past in script form you would be forgiven for thinking that this may have been a script for a television drama or more likely a soap opera.

It’s a story full of pain, loss and at times anger.

Yet it is my life and right now I am walking a journey which is laying it completely open and completely bare and its hard. It fact it’s blooming painful, yet in the midst of the tears of which there has been plenty I have actually found myself feeling a strength that is holding me all in place. In fact it must have the wire that has held me together through this life’s journey.

My faith in myself.

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I cannot go back and change the past. In fact I’m not sure I would ,as everything that has happened has formed me into the person I am right now and I actually rather like who I am.

We all have pathways to walk and as human beings we will make mistakes, we mess up and at times we completely screw up but its how we move forward that defines us. How we learn from experiences and how we grow.

 

My life may have been messy, but it has challenged me to see beyond the barriers. I love with all my heart, I believe in people with all my soul and most of all I have hope. Hope that with love and empathy this world can and will be a better place.

 

So if right now like me you are feeling scared and vulnerable keep pushing forward because you may not realise it, but these moments, these challenges may be the moments that define who you really are.

Is it pretend…?

My daughter was in her sociology class last week when the subject turned to fostering and adoption. She was sitting there listening to the views of others when one boys opinion really annoyed her, it seemed that to him fostering and adoption is “pretend parenting.”

Well I’m certainly not going to argue with the viewpoint of a 15 year old because as we all know at this age they are always right, but I would ask him to think about this.

Is it pretend when I walk the bedroom floor for hours soothing a teething baby?

Is it pretend as I wait patiently and worryingly outside the hospital theatre’s door?

Is it pretend when I hold them tight when they wake from nightmares?

Is it make believe the pride I have in all their achievements?

The worry I feel when they are sick?

The missing I feel when they are not with me?

Is it pretend when my heart fills with love for them?

I don’t really expect most 15 year old’s to understand but so many times I come across adults who just don’t get the love I feel for my fostered children. They see them as a means to an end or just part of my job. In fact the current government seems to view fostering as second class parenting but that’s for another post.

It just drives me mad that people view it this way, as it’s so far from the truth.

You see the moment I open my home up to child I also open my heart to them.

Slowly we both get to learn about each other.

I get to watch them as they come to understand that this is their home too.

I want them to know they are so loved, that they are so cherished and that they are so wanted.

I want them to put their stamp on their bedroom, knowing that it is their’s for as long as they want it.

To sleep without fear of moving on or not being safe.

I want them to know that they are now part of the tribe, that no matter what they do there is no giving up.

We fight for family in this home.

We fight for dreams to be realised.

There is no pretend is this family, just pure real true love.

A families love. 

 

 

Monday is the start of the Fostering Network’s Foster Care Fortnight. This years message is Time to Foster, Time to Care. They  want to spread the message that for many prospective foster carers NOW is the time to care and NOW is the time to foster. Please go take a look over on the Fostering network’s website and if you have ever considered fostering now is the time to do it.

There are so many children out there waiting for families to reach past pretend and to embrace them in real family love. 

 

Becoming a foster carer was one of the best decisions I have ever made.

It’s not always easy but it so worth it. 

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