Living like Livvy

So it’s finally here, a years worth of work, a lifetime of memories all collated together in “Living with Livvy.”

I’m so excited to share my girlie with you all, for you to read and learn how incredibly brave and courageous she was. I’m also feeling extremely vulnerable as well. Here in these pages I have not held back, I have opened my heart and my soul and its laid bare for you all to see.

It’s not been an easy journey, i have returned to places in my mind I was trying to hide from. Revisiting some of the hardest moments I have every faced.

Yet it will be worth it, if this book educated one more person about Rett Syndrome if it raises more funds for Reverse Rett Uk it will be worth it.

So people, I am laying out my heart and soul here for you all so please, please support me in this venture. Go visit Amazon and purchase my book and help me raise much needed funds, help me help those working tirelessly to one day have Rett syndrome cured. One day have this diagnoses be one not of fear.

It can happen and it will happen,  let’s help  make it so.

Please visit Amazon and purchase the book, please let your friends, family, coworkers know about the book. Share this post on your social media, lets get “Living like Livvy” out into the hearts of minds of everyone. Lets make Livvy”s legacy really one of hope, lets do her proud.


When I saw today’s word I was surprised by how apt it is for me and the time I’m in now. As tomorrow is the launch date of my story, a book that shares the journey of the life of my late daughter Livvy.

I haven’t written the book, I could never find the way to detach from the moment to write in clarity. It’s been written by an amazing man who over the last year has let me cry on his shoulder, encouraged me to remember and then used his words to explain my heart to honour my daughter.

It’s not been easy I have to surrender my heart and my soul, to share truthfully and openly my story. Allowing my mind to go to places that it’s had tried to protect me from. Having to surrender to the pain I faced to find the words to bring reverence to the courage of my beautiful daughter.

Yet as I sit here excited for release day tomorrow I confess I am nervous. Tomorrow between these pages those that read it will know my heart. They will walk my journey through Olivia’s life with me. I’m not expecting judgement, I’m not expecting dislike but transparency can come at cost.

Still it’s a cost I’m willing to pay in hope that one more person learns of the devastating condition of Rett Syndrome. Learns what each and every girl has to face each day. Understands maybe a little more the pain and anguish the parents and families face.

I’m surrendering my soul in awareness, sharing my heart in hope.

Hope that those that read will learn of the condition, pray that one day a cure will be found for this evil syndrome.

But more than this I hope and pray that people learn that life is a gift not to be kept perfectly wrapped up in a pretty bow but a life that should be ripped open and enjoyed to the max.

I learned the hard way that none of us have the promise of forever, but we all do have the gift of today.

Go live it xxx

Joining in again with the Five minute Friday party.


I wonder if I am the only person who self analyses themselves daily? I sit in bed each night wondering if the decisions of the day were the right ones or if I could have done something different or better. Yes these self refections sessions often do turn to self judgement but its something I have always done and at my age I cannot imagine me stopping.

Yet since the beginning of this year I have seen a change in the way I reflect upon myself.

I am finally allowing myself some space, I’ve become intentional in the decisions that I am making. Saying yes when I only actually wish to do something, saying No when I need to.

I’m learning to give myself peace, switching off from social media, leaving emails to the next day. I am finally understanding that I can not be all things to all people, I have to focus on the roles that fill my heart.

This is a massive emotional step forward for me, so often I have said yes not because I have wanted to but because I have not wanted to upset another, to let others down. Finding myself stretched and exhausted and often extremely unhappy.

I am learning its ok to sit with a baby in your arms and just breathe in their innocent smell. To veg on the sofa and watch too many episodes of the big bang theory, to relax in a bath until the water goes cold.

I’m realising that my body needs rest, that if the baby is awake through the night that the care hours can be used to sleep and recharge.

Its been a journey of intention and one that has made me smile a lot more.

How did i get to the place where self care felt wrong. That by taking care of myself I was being selfish and lazy? How did I let myself down so often?

I don’t know, or maybe I do but just don’t want to face it right now. Maybe that in itself is self care, sometimes its okay to just move forward without having to understand the past.

So 2018 I am moving forward, being kind to others and myself.

Intentional self care. 



Women of spirit.

So I’m entering 2018 really excited to be a woman, it finally seems that women are coming together to say enough is enough. Last night’s Golden Globes saw women and men standing together to say “Time’s Up”. With Oprah’s speech receiving the loudest applause as she stated

“For too long, women have not been heard or believed if they dare speak the truth to the power of those men. But their time is up. Their time is up!”

Oprah speaks the truth and I finally feel that women’s voices are going to be louder and stronger than ever, and its about time too.

The collective of voices shouting Me too will hopefully encourage others to stand up against whatever discrimination they are facing.

Knowing that you are not alone gives many strength.

At the end of last year I was gifted an amazing book titled “Women of Spirit”,  compiled and photographed by Susie Mackie, and over the Christmas period I have worked my way through this book, often finding myself in tears at the bravery and strength of the women who share their stories between the pages.

Women who have faced so much throughout their lives yet still move forward with such courage. Refusing to be beaten they somehow found the strength to fight.

Truly incredible women.

Women sharing their stories in hope of inspiring others to live their lives with transparency and strength. “ If we can do it so can you.”.

In a time where woman are so needed to support one another this book was a breathe of fresh air for my lungs. When the news is full of so much hate and discrimination this book just sings hope.

If you are searching for inspiration or just want to read the stories of 20 incredible women I highly recommend this book.

Bye bye 2017, Hello 2018

So as we begin 2018 its only right that we take time to reflect on 2017 and all this year has brought us.

1.What was your happiest event?

This is an easy one to answer, the adoption of Daniel. Although we have had Daniel as part of our family since December 2015 being able to officially call him my son was such an amazing day and one I will cherish for a lifetime. It is the day the paperwork caught up with my heart.

2. What was the saddest thing to happen?

We lost more children to Rett Syndrome, each one breaks my heart. I pray that this year will be the one of the cure.

3. What was the most unlikely thing to happen that actually went ahead and did?

I had my first jager bomb and got gloriously drunk with a group of new friends and ended the night dancing in a 80’s/90’s nightclub. Not something I would do often but it was nice to let myself go especially after the year we had.

4. Who let you down?

I don’t actually think people ever mean to let others down, sometimes I wonder if I do have too high expectations but I’m working on entering 2018 stronger in myself and relationships.

5. Who supported you?

This list is vast, from family, friends, church, internet peeps its been an intense year but I have felt myself lifted up by so many.

6. Tell us what you learned

I am responsible for my own happiness, I often find myself feeling upset by others yet I am not responsible for them. My happiness, my joy is mine to find. I cannot expect others to know what I want if I don’t, so I’m excited to work on this in 2018, making more time for myself and my hopes and dreams.

7. Tell us what made you laugh

So many things, I have a really dry sense of humour and love nothing more than a good belly giggle.

8. Tell us the things that made you cry

Anyone who knows me will tell you I am a crier, I mean even adverts set me off. Yes 2017 has brought me to tears in so many ways, the loss of too many too soon. The current governments disregard for human life, seeing first hand people waiting in hospital corridors on trollies in pain. Doctors and nurses searching around for much needed equipment. Food banks, family breakdowns due to financial pressures, and so much more.

I have watched families with children with disabilities battle daily for essential equipment, support and care. Watching those who try to live the best way they can be belittled and broken by a system that cares more about profit than people.

I need to believe we are a world that loves, yet right now I am having to search for the light in the darkness.

9. Tell us three things your child or children did to make you feel proud.

My children make me proud everyday.

This year my eldest Kennedy, graduated university and is now doing a Master’s. I love her thirst for study and cannot wait to see where the future takes her.

Eden has started a new job and is doing so well, proving finally to herself what we have always known, she is awesome.

Brodie has left school and started at college, her confidence has grown incredibly and whilst she still is anxious she is finding the courage to live life to the fullest.

Daniel has done so well this year, although the beginning of 2017 was rather scary he has defined the odds in so many ways. He is really expediting expectations, I love watching his character form.

10. Tell us the things that made you proud of yourself.

This is a hard one as I struggle to see pride in myself yet over this last year I can see I have become stronger. The adoption process made me really look at who I am and besides gaining a new son I have finally realised that I’m not too bad.

11. Tell us the challenges you overcame

Life is a challenge so everyday I am learning to see all that I have overcome and to pat myself on my back now and again. I have faced situations which I would normally shy away from but I’ve also learnt to say No. This has been a massive challenge for me.

12. Tell us the things you would like to change about your life in 2018

I want to be a builder in 2018.

Building on my education

Building on my friendships

Building on my writing

Building on my family,

Building more laughter into my life.

But most of building the memories.

Life is for living, hoping 2018 is a year of living life to the fullest, loving hard and laughing louder.




Joining in with and her HIGHS AND LOWS OF 2017 link up.

Feel free to join in if you want to

1. What was your happiest event?

2. What was the saddest thing to happen?

3. What was the most unlikely thing to happen that actually went ahead and did?.

4. Who let you down?

5. Who supported you?

6. Tell us what you learned.

7. Tell us what made you laugh

8. Tell us the things that made you cry

9. Tell us three things your child or children did to make you feel proud. Please miss this question out if you are not a parent.

10. Tell us the things that made you proud of yourself.

11. Tell us the challenges you overcame

12. Tell us the things you would like to change about your life in 2018